I was diagnosed in September 1999 with a PSA of 2,080 ng/ml and with metastasised PCa Bone Cancer. I also believe in Alternative Treatments along with the Hormone Treatment and have survived this long.
My PSA currently is 87.7 and rising. I am looking for other Treatments including current Trials.
I broke the femur in my right leg last May 24th, 2011 and have not driven since. I have been on Zoladex for over 12 years and on and off Zometa for 8 years. They did Radiation on my leg to see if that would stimulate the growth. I will find out on the 24th if it worked.
My PSA has been as high as 2570 lately but my latest was 1615. I was on a Millennium Trial but I was either on the Placebo or the Drug didn't work. The Millennium Trial was a version of Abiraterone without chemo failure for an individual. It was designed to get around the problem of the use of chemo and Abiraterone.
The reduction of my PSA was due to the use of Nilutamide (a form of Casodex) that I went back on, w/o consulting my urologist, but he approved after the fact. It is, as you have said, that you have to be active in your treatment and not passive.
Sadly, we were informed of Al's passing with the following information:
It is with great sadness that we share the news that on Saturday, May 11th Al Hutton, a long-time member and active volunteer with the prostate cancer community, passed away.
Gerry Pielsticker wrote on the day of his passing:
"This morning at 3:00 a.m. Al Hutton passed away at Credit Valley Hospital in Mississauga. Al taught all of us how to be selfless, determined and admired.
In 1999 with an initial PSA of over 2000, he told four Doctors he wasn't going anywhere and would fight prostate cancer with every ounce of energy he had. During the last week of April he was working on his tax returns. Only during the first week of May would he let me cut his beard and hair. We had many good laughs during this activity. On April 13 we donned our red noses to keep family and the nurses smiling.
May he rest in peace."