THERE WAS NO RESPONSE TO AN UPDATE REMINDER IN 2016 SO THERE IS NO UPDATE.

I thought that one went to the doctor when they were sick so I was well along with my PCa when I was diagnosed. It was a shock to me as I felt great and was in good physical condition.

I imediately started ADT (Androgen Deprivation Therapy) with Eulexin followed by Lupron ten days later. I started EBR (External Beam Radiation) one month later.

I stayed on Eulexin for 2 years and Lupron for 3 years. Back in 1993 the standard protocol for ADT was to remain on it for the remainder of one's life. I told my Doctor that I would be his first patient to go off of Lupron and I was. I had read about Intermittent ADT and told my Doctor that I would like to try IADT. He also read a study on IADT and agreed on this protocol.

My first "off cycle" lasted 32 months before restarted ADT with Lupron, Casodex, and Proscar. The second "on cycle" was for 12 months followed by a 9 month "off cycle". My PSA had reached 3.6 and I needed to restart ADT but I did not want to resume the use of Lupron so I tried 150 mg of Casodex and 10 mg of Proscar. This protocol reduced my PSA to .7 and has gradully increased over the last 37 months to 3.91.

I plan to resume ADT-3 with Lupron, 50 mg Casodex, and Avodart before my PSA reaches 8.0. I have been fighting this PCa for about ten and one half years and plan to continue for another ten years! I am willing to answer any question that anyone might have about my treatment.

After 38 months of using 150 mg of Casodex and .5 mg of Avodart my PSA has reached 7.41 with a T of 507. I started on this protocol when my PSA was 3.6. It decreased to .7 and then has gradully increased to the present 7.41. I just started a new protocol of 4 month shot of Elegard, 50 mg of Casodex, and .5 mg of Avordart and will monitor my PSA on a monthly basis.

After 11 years of ADT, ADT2, ADT3, IADT, and High Dose Casodex, I have just started HDK+HC (High Dose Ketoconazole plus Hydrocortisone). My PSA has reached 8.0 so it is time to fight my PCa with a new treatment - HDK+HC.

My bone scan shows no evidence of PCa in my bones as yet so I feel very fortunate. I am now 70 years old and am very active. I bowl on four leagues and golf when I have time. The secret to maintaining good physical conditioning while on ADT is to keep very active with hard physical work and sports. This also helps the mental health as well.

I would be glad to answer any question that one might have concerning ADT treatments and side effects.

I tried HDK but my body did not like this protocol as I broke out with a rash and had headaches. I reduced the Keto to 200 mg x3 times a day(LDK) with good results and have been on this treatment for 16 months. My PSA was about 8.0 in Nov 2004 when I started on this protocol and has decreased each PSA test until the present.

My PSA was 0.12 on Jan 9, 2006. I am also on a variety of LHRH over this period. I am on Trelstar now but have used Lupron and Eligard in the past. I feel better now than I have for many years and am very active with my bowling, golfing, boating, and yard work. Twelve years three months and still going strong at 72!

My current treatment of ADT using Trelstar, LDK + HC, Actonel, and Celebrex has worked well for 2-1/2 years but my PSA is rising from a low of .11 to 2.1 over the last year. My T is 0 so the current treatment is working well to limit the growth of hormone dependent PCa cells but the hormone independent PCa cells are starting to increase. I do not know what treatment I will try next but I will have to decide in the next few months as I do not want my PSA to continue to rise without trying something.

I continue to stay as active as I can and enjoy riding my motorcycle, bowling, golfing, boating, and working in my yard.

The last year I have been following a protocol of a LHRH, LDK+H, Celebrex, and Zometa infusions. My PSA has been holding quite steady at about .11 to .21 until August 2007. At this time my PSA gradually started to increase to .52 in November 2007. At the present, my PSA is doubling every 3 months. In August 2008 it was 1.65 so my Dr. suggested that I try adding 500mg of Casodex. It has been about 4 years since I had to discontinue the use of Casodex because it was causing my PSA to rise rapidly. I will monitor my PSA each month for a while and will stop the Casodex if my PSA rises rapidly. I have considered trying diethylstilboestrol (DES) but my Dr. is reluctant. My next treatment may be Taxotere but I am reluctant to start Chemo. My bone scans continue to show no evidence of spots on my bones.

After 15 yrs. of fighting my prostate cancer, I am still very active and at the age of 74 enjoy bowling, golfing, boating, and riding my motorcycle.

It has been 16-1/2 years that I have been fighting my PCa.

This last year my PSA has increased from 1.65 to 9.36. A new drug was approved by our FDA about 3 months ago and my Dr. suggested that I try this different form of Hormone Blockade (Degarelex). The first treatment was 240 mg injected into both sides of my belly. This caused a severe painful reaction at the injection areas. This subsided in about 2 weeks just in time for the second injection of 80 mg. This was not as bad as the first one.

My PSA did not decrease so I was going to stop this treatment but after 2 1/2 mo. my PSA decreased from 9.36 to 7.86 so I decided to continue with this treatment. This decrease is good because my PSA was doubling about every 3mo. I am checking my PSA and getting a shot of Degarelex each month.

If this treatment continues to hold down my PSA, I will be able to delay chemo with Taxotere. I am still quite active at 75 with bowling, golfing, boating and riding my motorcycle.

I have an amazing update story.

After 17-1/2 years of fighting my PCa with HT and RT I finally had a PET scan that showed that all of the cancer was still in the prostate area. Biopsy showed GS 8 on the left and GS 7 on the right side. I was on Degarelix, LDK + H, Farestan, and Avodart but my PSA was 11.5 so I started to investigate what treatment options were possible.

The Radiologists ruled out seeds and EBRT as I had about the maximum radiation years ago. The Radiologists suggested Cryotherapy. My Urologist knew of a Urologist six hours away that specialized in Cryotherapy so I went to see him. He was confident that he could use Cryo to help me.

The treatment consisted of two Cryos, first the left side and then the right side after 6 weeks. The results:

PSA prior to Cryo 11.5
PSA after Cryo .27
PSA after 2nd Cryo 0.02

I have discontinued all HT and will keep a close watch on my PSA. Of all the men's stories with PCa I think that mine is the most amazing!

Cryo surgery 9/6/10. For one year my PSA was holding at .01 but after two years it started to increase. My T had been at 0 for many years but started to increase. At the present my PSA is .04 and my T is 25. My PSA seems to be doubling every 3 mo. I will keep watching my PSA until it reaches a value that I will need to start some treatment.

After about 2 and one half years of no ADT my PSA increased to .2 and my T increased to 44. A PET scan showed that the cancer had spread to many of my bones so it was time to start a new treatment. I started a new treatment in March 2013 using PROVENGE. The treatment consisted of selecting an Oncologist, having a port inserted in my chest, having my blood removed, processed at a blood center and replaced minus some white blood cells and two days later having the white cells treated with PROVENGE inserted back into me. This repeated 2 more times two weeks apart. After the last treatment I had the port removed.

PROVENGE is the first FDA approved immunotherapy for men with advanced prostate cancer. The treated white cells activate the immune cells which attack the prostate cancer. The purpose of this treatment is to extend my life so I hope it works well! I am still on 6 mo. Eligard shots and monthly X-geva shots. I will update my story when I have new information concerning my health.

At 79 I am still very active bowling, golfing, riding my motorcycle, working in my yard, and spending time with my children, grandchildren, and greatgrandchildren.

A PET scan showed that the PCa had spread to my spine, back, lung, and liver so it was time to try some new treatment. I continued with ADT-(Eliguard) and X-geva and added Zytiga. Zytiga blocks all hormone even the hormone produced by the cancer cells. I could not lay on my back or left side because of the pain so I had some of the hot spots radiated. Now I have no pain. I developed a blood clot in my leg but the hospital could not find it so I went on vacation for 3 weeks. By the time I got home my leg was really swollen! At this time I had decided to try Chemo so my Oncologist put me in the hospital to treat my blood clot and insert a port for Chemo. I discontinued Zytiga and started Chemo with Taxotere. I have completed 3 treatments of Chemo and have my 4th in 3 days. Eight weeks ago I was bowling, riding my motorcycle, and doing my yard work. Now I walk with my walker and watch TV! I hope that this treatment with Chemo will permit me to get back to a life style that I enjoy. All in all I have been very fortunate to survive for 22 1/2 years fighting this PCa!

I have just completed 5 mo. of Chemo. A cat scan showed that the PCa in my lungs and liver decreased about 2/3 but the PCa in my spine and back did not decrease. I am starting today on a drug called Xtandi. It works as a receptor blocker so I guess it could be classified as a form of ADT. The chemo has left me very weak and I now have to use a walker. My goal is to be able to walk without it by the end of Dec. I want to get back to bowling and riding my motorcycle! I lost 40 lb while on chemo so now I need to eat plenty of calories to regain some weight. My PSA is .2 but is no longer an indicator of the progression of my PCa. The cost of the Xtandi is a problem for me since it cost $421 this mo. which was my co-pay. At this rate my savings will not last long! I continue on Xgeva shots each mo. and 6 mo. shots of Eliguard. I plan to get another CAT scan in January.

Bob's e-mail address is: rcxjones AT yahoo.com (replace "AT" with "@")

NOTE: Bob has not updated his story for more than 15 months, so you may not receive any response from him.