E-LETTER #1 - GO TO INDEX FOR EARLIER LETTERS   YANA - YOU ARE NOT ALONE NOW PROSTATE CANCER SUPPORT SITE

Prostate men need enlightening, not frightening August 24, 2011 Why this E-Letter? Changes in the YANA site I decided to set up an E-Letter delivery to interested YANA people initially because of the changes I have decided to make to the YANA site - and for letting you know of any future changes. The main change at present is that I will no longer be posting new Experiences or Updates to existing Experiences. Many of you will have heard this news, but I felt I should try to tell as many people as I could. The rest of the site will remain unchanged for the moment, although I am aiming to make some improvements over time. If I do that, this E-Letter service will be a useful way to let you know what is happening. Why the changes? When I was diagnosed I was told that I might live fifteen years if I was lucky. I set my personal survival target at twenty years. I hit the fifteen year mark on August 12, 2011: I should reach by my Biblical "use by" date of three score years and ten in a few months. These two events have caused me to pause and re-examine my life; to consider what I have achieved and what I want to do with the rest of my time, especially IF I do have only the five years of my original target left. I realised that I had been spending more time than I had originally intended on prostate cancer related work. So that had to be cut back. As an initial step, I stopped the updates and posting of new stories on YANA from the end of July 2011. With over 1,000 stories on site, managing that was like painting the Golden Gate Bridge!! But.....there is an alternative So many people have said they found the Experiences pages so useful that I was concerned about "abandoning" the newbies who will come looking for help. Fortunately a similar, but much improved version of the YANA Experiences site has been developed in Switzerland. The site is myProstate Site The site was built in German and most of it was then translated (very well) into English, but it will take some time before that is completed. All the relevant items are in English, although some of the terms need a bit of an explanation - see link below. Experiences are written in English, German, French or Spanish and can be translated at the click of a button. There are many excellent features such as summaries of side effects of various therapies and drugs, graphs that plot PSA (and other) results, and many others. I would urge everyone who has contributed their experiences to the YANA site to move their story there. It has become very clear to me over the last fifteen years that personal accounts of our journeys are very important indeed to those who follow behind us. My story is there already. Updating your story will be much more simple in the future than it is now because contributors can enter data and details of their journey directly. Links to the Guides to help you set up your story and to get the most out of the site are given below. myProstate terms Although the translation of the myProstate site from German to English is excellent there are some terms that have caused confusion. They are dealt with here: Clarifying Terms myProstate and other Links Creating Your Story Ordering Reports YANA Experiences Index YANA Forum YANA Continues YANA will continue as it is for the moment. I want to update and upgrade parts, which like an old house need a lick of paint, so be sure to carry on recommending folk to visit especially A Strange Place

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