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Bob B and Maureen live in California, USA. He was 52 when he was diagnosed in October, 2009. His initial PSA was 7.00 ng/ml, his Gleason Score was 8, and he was staged T2a. His initial treatment choice was Surgery (Robotic Laparoscopic Prostatectomy) and his current treatment choice is None. Here is his story.

THERE WAS NO RESPONSE TO AN UPDATE REMINDER IN 2018 SO THERE IS NO UPDATE.

I had a annual physical and the internist suggested a PSA test. My PSA was a 6.1 and he sent me to a urologist.

Re-test and new PSA of 7.4. Possibly an infection Cipro for 7 days and retest in three weeks. New PSA count of 7.1 doctor informs me I am a 7 and need a biopsy.

Biopsy scary but no big deal. Result from eight samples one core Gleason Score of 4+4=8.

I am on my way to see the urologist now and am grateful for you site as it really helps.

God only knows what treatment I will go with.

Later: So... I have seen seven different doctors, I had two pathology reports done and the numbers came back the same. I saw doctors from UCLA and Cedars Sinai in Los Angeles.

The consensuses is for my age and Gleason score surgery is the best decision and we will decide after the final pathology report if radiation is needed. I hope and pray that the cancer is organ contained. I have been through a Bone Scan, cat scan and a MRI all where tolerable but the MRI was uncomfortable.

The hardest part of all this research and doctors is the anxiety that is causes when I made the decision to go with Dr. Reiter and LR surgery I am much better and gearing up for Surgery on Jan. 4th.

I am so grateful for all your support and this site.

Thanks
Bob

UPDATED

February 2010

I had surgery on January 4 and it went fine.

Like most of the post it was not fun but I am recovery quickly. Checked in at 5:00 am fell asleep at 7:15 am, woke up at noon, I was very thirsty and my right shoulder hurt from the way they position you. I was up walking around 5:00 pm and again at 8:30 pm went home the next day around 11:00 am. My doctor came by twice and said everything looked good and he would see me in a few months.

The best advice I can give is start walking ASAP and do as much as your body will allow and you will recover quicker and easier. When I pushed too hard I would see blood in my urine and I would back off a little. That only lasted a couple of weeks I now walk a minimum of 30 minutes per day and longer on weekends. Four weeks post op I played my first nine holes of golf, five weeks I played two sets of tennis. I am almost six weeks post op and I am 90% back.

As for incontinence, I was using two pads per day immediately after having the catheter removed. After three weeks, I was down to one pad per day. I am thinking of switching to a smaller pad soon as I still leak every once in a while when I move in a unexpected way. Keep doing Kegels all the time it really works...

My pre-surgery staging was T2a as they could feel the edge of my prostate was not firm. My post op pathology report came in as T3a and a Gleason 8. That's the bad news the good news is my margins are clear and there is no involvement of the lymph nodes, seminal vesicles, apex and base of the prostate.

We are seeing the doctor on March 4, eight weeks post op to discuss next steps. I am waiting for my first post op PSA test with great anticipation, I hope and pray for good news.

As always thanks to all of you for this amazing and helpful website.

Bob

UPDATED

July 2010

Had my first post op PSA and came back undetectable 0.01

Spoke with my surgeon and multiple doctors and decided to have adjuvant EBRT. 72 rads over 40 sessions. Felt good during sessions last couple of weeks were tough.

Had my second post op PSA undetectable again Thank God.

I don't leak at all and my sexual function is good, not the same as pre op but it all works pretty good.

Best to all Bob.

UPDATED

May 2011

I went six months with a undetectable PSA. Then it started creeping back.. 0.02 then 0.05; at nine months 0.19.

I have started on Adovart at my oncologist's advice and hope to slow down the progression.

I have gone on the Mediterranean diet. Everything else is working fine.

Thanks Bob.

UPDATED

May 2012

Hello all

I have been on Avadart for 9 months and my PSA is creeping up.

Will go on ADT sometime in the future. Hoping to delay that as long as possible.

Feel great on the Mediterranean diet.

My best to all

Bob

UPDATED

July 2013

As my PSA continued to rise I had a PET 11 acetate scan at UCLA when my PSA passed 1.00 and it showed no cancer. I waited 3 more months having my PSA taken every month and when it was over 3.00 I had another scan this time it showed cancer in a lymph node on the left side outside the prostate bed. I went on the triple hormone blockade and had 5 rounds of radiation on the exact spot of the lymp node. My PSA; has dropped in one month to 0.38 and hope to be undetectable soon.

I will be on hormone therapy for 9 to 12 month and then see what happens. Welcome to the roller coaster ride. The only side effect is hot flashes and a little fatigue. Still on a strict Mediterranean diet and lots of exercising including weight training.

Good luck to all and F*** Cancer

Peace,
Bob

UPDATED

November 2014

Hello All

I was on ADT for nine months. PSA droped to 0.01 after 30 days. I have been off for 6 months and my PSA is still undetectable 0.02. No new side effects feeling very good. My PSA is tested every 90 days and hope for the best.

Peace
Bob

UPDATED

October 2015

Hello all it has been another year cancer free.

My PSA is 0.02 and steady. I still get a blood test every three months and still on the Mediterranean diet.

I still take Avadart everyday with no side effects.

I still go to my support group once a month.

I believe all of the above is helping me everyday.

Peace

Bob

UPDATED

November 2016

Hello all it has been another year Kinda cancer free.

My PSA is 0.01 and steady. I had a PSA spike 8 months ago to .07 then .04 and Now 0.01

My Oncologist says it we the final spike. God I hope so.

I still get a blood test every three months and still on the Mediterranean diet.

I still take Avadart everyday with no side effects.

I still go to my support group once a month.

I believe all of the above is helping me everyday.

Peace

Bob

UPDATED

August 2017

Hello all

I am pleased to say another year cancer free.

My PSA is 0.01 and steady.

I still get a blood test every six months and still on the Mediterranean diet.

I still take Avadart everyday with no side effects.

I still go to my support group once a month.

I believe all of the above is helping me everyday.

Peace

Bob

Bob's e-mail address is: baileybob3533 AT aol.com (replace "AT" with "@")

NOTE: Bob has not updated his story for more than 15 months, so you may not receive any response from him.


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