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John Chandler lives in Virginia, USA. He was 65 when he was diagnosed in February, 2001. His initial PSA was 3.80 ng/ml, his Gleason Score was 6, and he was staged T1c. His choice of treatment was Surgery (Retropubic Prostatectomy). Here is his story.

I had surgery (an open RRP) at Johns Hopkins on July 31, 2001 at age 65, done by Dr. Alan Partin. The pathology report was favorable: all surgical margins negative, Gleason score still 3+3, no extracapsular extension, seminal vesicles and lymph nodes negative, both nerve bundles spared. I had a better recovery than 98% of the 200+ men with whom I have corresponded. However, it is my belief that there is a negative long-term effect on erectile function in 100% of cases treated by surgery. If I were diagnosed today, I would probably not choose surgery as a treatment, nor would I choose any form of X-ray radiation.

My PSA has been undetectable. In my opinion, surgery is one viable treatment for early-stage PCa, IF it is done by an "artist" such as Dr. Partin.

UPDATED

April 2005

My PSA continues to be undetectable. I maintain what I regard as the best list of supposedly good RP surgeons in the U.S. and Europe. I also maintain lists of U.S. specialists in imaging, radiological oncology, and medical oncology.

I e-mail these lists to anyone requesting them. (Of course no guarantee is made concerning the performance of any given physician.)

UPDATED

April 2007

Latest PSA was in December 2006:

For me, surgery by an "artist" or "magician", Alan Partin, was a reasonable choice given my lack of knowledge at the time, but I never recommend any one treatment to any man. Study, choose, and don't look back! WW is certainly an option for early-stage PCa, particularly if imaging is used annually.

If a man chooses surgery, I don't think anyone could find a better surgeon or physician than Partin: "Dr. Partin is a doctor's doctor." to quote Dr. Charles "Snuffy" Myers, eminent PCa medical oncologist.

UPDATED

July 2008

I have annual PSA tests, and my PSA is still undetectable. My prostate cancer was caught early enough that I might be cured, although we won't know that until I die with an undetectable PSA ;-).

I'm still working full-time at age 72, and I still enjoy my work.

Good luck and best wishes to you!

UPDATED

October 2009

My PSA is still undetectable after eight years, and probably always will be, but I'll keep doing annual tests.

UPDATED

March 2011

I retired at age 75 and now live in Virginia. When last measured my PSA was still undetectable, < 0.1 mg/nL.

I intend to update my entry some time after the ten-year anniversary of my surgery in July 2001.

UPDATED

November 2011

Great!

On July 31, 2011 I passed the ten-year anniversary of my surgery with my PSA still undetectable. Chances are good that I am now home free, as far as PCa goes.

I still e-mail my lists of supposedly good surgeons, imaging specialists, radiological oncologists, and medical oncologists to anyone who requests them.

Best wishes!

UPDATED

February 2013

[In an update, John provided a few clarifications to his story, which have been incorporated above.]

UPDATED

May 2014

My PSA was measured in April 2014 and is still undetectable.

UPDATED

June 2015

My PSA is still undetectable (<0.1 ng/mL) at age 79, 13.8 years after surgery. I retired in 2011 at age 75. I remain fairly active, playing racquetball.

My choice of treatment, surgery by an expert surgeon (Dr. Alan Partin at Johns Hopkins), was the best choice I could make in 2001 given the state of my knowledge at the time. If I were diagnosed today I might choose Active Surveillance (AS) including quarterly PSA tests and some form of advanced imaging annually, but not repeated biopsies. For cases similar to mine that are pretty clearly early-stage (Gleason 3+3=6, PSA less than 6.0 ng/mL or so, few biopsy cores positive, etc.), I recommend that newly-diagnosed men investigate both AS and, separately, proton-beam radiotherapy (PBR). AS does not cause negative side effects, but of course it does carry some risk of advanced disease and premature death, so it takes a special kind of personality in the patient to do AS. Some PBR patients claim to have experienced few to no negative side effects, although noted PCa medical oncologist Dr. Mark Scholz says he has seen cases of decidedly negative side effects from PBR.

"You pays your money and you takes your choice."

UPDATED

September 2016

When last tested in 2014, my PSA was 0.0 ng/mL.

After giving me the postoperative pathology report in 2001, my surgeon Dr. Alan Partin, the leading authority on recurrence of prostate cancer (PCa), said that although there are no guarantees, he thought the probability of my having an undetectable PSA fifteen years from that time (that is, in August 2016) should be "over 95 percent."

One of my early PSA tests was an ultrasensitive test, and it also gave 0.0 ng/mL. According to research published by Dr. Stephen B. Strum, this indicates that any future recurrence of PCa is unlikely. I recommend having an ultrasensitive PSA test for any man who has had a prostatectomy.

I plan to be tested again when I have a new personal physician, and will post those results. My present plans are to die with an undetectable PSA, but not for at least another thirty years. However, "Man proposes; Nature disposes."

At age 80, my health is excellent. I take no medications and I play racquetball regularly, including playing in tournaments at my health club. All of my racquetball matches are against opponents who are younger than I am, and I win most of those matches...

John's e-mail address is: jpc AT cs.okstate.edu (replace "AT" with "@")


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