In Fall 2015 my GP told me my PSA was 'a little high' and referred me to a specialist. Against common wisdom I didn't go right away, too busy, felt fine, doubted accuracy of the PSA, etc. A few months later I did get a rectal exam, and when a lump was detected, the biopsy results brought bad news.
After the shock and then the scans, then searching for the right medical team, I opted for prostate removal, done 11/11/16. That went as well as could be expected (had to go a 2nd week with the catheter, not at all fun). Dr. McGinniss was positive afterwards, saying the tissue analysis showed no activity outside the capsule, nothing in lymph nodes he removed, etc.
The next couple of months were mixed. The abdominal pain subsided, I was finally able to sit without pain, and the continence returned. And while the sexual function was still at bay due to ED, I was optimistic it would return at some point.
Unfortunately, the 3-month PSA test showed I'm in the small percentage who still show a PSA reading (0.154) after completing the robotic laparoscopic prostatectomy. Have an appointment with Dr. McGinniss next week to discuss my options. Will post again after that consultation.
Thanks to everyone who's posted here, it's been truly helpful in dealing with these health issues.
On 2/15/17 I had a follow-up consultation with Dr. McGinniss, who'd performed my prostatectomy on 11/11/16. The 3-month post-op PSA (taken on 2/1/17) was a disappointing .15. A second PSA was taken 2 weeks later and had risen to .21. Doctor advised waiting for another PSA check in 3 months, and depending on the PSA level may opt to administer prostate bed radiation therapy along with hormone therapy. While Dr. McGinniss is an excellent surgeon and otherwise knowledgeable, I'm researching possible candidates for a second opinion, possibly someone with more of an oncological background and who may be familiar with nutrition-based therapies.
Meantime I've gone onto a total plant-based diet, as well as taking daily anti-cancer nutritional supplements such as licorice root powder, milled flax seed, black raspberries, fenugreek powder, and apple peel. I stopped taking daily multi-vitamins which I didn't tolerate well and produced anxiety. Now I feel very good, have lots of energy, and despite the ED have been experiencing libidinal urges. I'm maintaining a strong positive outlook despite the adverse PSA readings. I think it's important to manage stress and as much as possible maintain good physical condition (I currently work out 5-6 times a week) in order to give oneself the best advantage in dealing with the disease.
Thanks to everyone who's posted on yananow.org, as it has been very helpful for me. I admire the courage everyone brings to the board. I hope my posts will be helpful to others as well.
My former Urologist/Surgeon Dr. McGinnis referred me to a Radiation Oncology group at the Bodine Center of Jefferson Health in Philadelphia. Met with that team and EBRT was suggested, along with ADT. I received a 3-month Lupron injection along with daily oral Casodex starting May 12 ('17). I haven't had any tests since starting it, so I don't know if it's keeping my PSA in check. The .3 reading was from late April ('17), so it's likely somewhat higher by now. However, I've had no adverse side effects from the ADT so far, and actually feel better on it (less anxious, sleeping much better). I'm waiting to hear from the Jefferson team on when/if I'm to start salvage EBRT. Maintaining a strict diet/exercise regimen, which at the least is helping my state of mind and sense of well-being. Best of luck and health to everyone.
Bill's e-mail address is: w.pettit AT comcast.net (replace "AT" with "@")