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 BRONZE 
This member is a YANA Mentor This is his Country or State Flag

Aleph B lives in Kansas, USA. He was 54 when he was diagnosed in October, 2013. His initial PSA was 20.60 ng/ml, his Gleason Score was 8, and he was staged T2b. His choice of treatment was Surgery (Robotic Laparoscopic Prostatectomy). Here is his story.

My first PSA test I ever had was at 49 years old, it was 4.0. My doc didn't choose to refer me, didn't even mention it. My second was 2 years later and it was 7.8. Doc referred me, but I blew it off.
NOTE: 49 is way too young for that high of a PSA.

My third was another 2 years later and it was 20.6. Wow, things got serious. Went to the Uro, he stuck the wand of pain up my backside and told me later that I had prostate cancer and my Gleason was 8.

So, At this point I'm not all that worried because it's just prostate cancer. You know the good cancer. What the heck did I know, time is a cruel teacher sometimes.

Anyway I had my shot of Firmagon, then had my Robotic RP. Dang, I'm a Gleason 9 now, it's invaded every portion of my prostate and 75% or more and even escaped it. Everything positive.

Shiotsoo!!!!

But my Uro says he's still thinking cure, I'm hopeful. Anyway, I go on Lupron for 2 years, feeling like the woman I ain't.

Post-op 18 months(June 2015) I had radiation to the pelvic region including lymph nodes. My RadOnc tells me, "You know if this don't get it, it's incurable."

Feeling depressed.....

But that was then, I had my last Lupron shot in Feb 2016 and I'm still undetectable in November 2016. I'm feeling pretty good, my marriage is better than ever, I have a great job. Just living for the day, appreciating everyone and everything.

What have I learned. EVERY guy is different. Do your homework, ask questions, make your own decisions about treatment and don't let the beast scare you, live life and love everyone even those you don't like. Oh, and don't take any BS from anyone, life is short live it to the fullest!!

UPDATED

August 2017

In early 2016 I got to take a Lupron vacation, an RP, RT and 2 years of HT was the standard, all as a big ZERO.

Anyways, after 15 months of freedom my PSA showed a rise. It came up at 0.18, I changed to a MedOnc at KU Med. He has done two more PSA tests, each rising significantly. 0.30 and 0.71.

I will be having scans done this week to see if there are any mets. :(

After that, I'll restart the Lupron and doc says either Zytiga or Xtandi.

I have been very depressed these last 4 months. Yes, it has gone from 0.18 to 0.71 in 4 months. That's a doubling time of about 6-7 weeks. I know I'm not dying tomorrow or this year. But now that the beast is back, I know my time is limited.

Just a note: my post surgical examination showed that I am a Gleason 9, all aspects of the prostatectomy came out positive except for bladder neck invasion. So, I am stage 4, pT3b

Aleph's e-mail address is: alephbull AT gmail.com (replace "AT" with "@")


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