2015
May 26 Visited Dr K. due to urgency of urination.
June 11 PSA test following a DRE at Dr K.'s office PSA=35.2
June 12 Discussed results with Dr. K,- Referred to Dr Z.-Biopsy
June 22 12-needle biopsy Gleason score of 3+4=7. Dr. Z recommended prostatectomy due to high PSA and size/involvement of tumor. Rated at T3
June 30 Whole body bone scan- no unusual uptakes
July 2 Lower Abdomen CT scan-
July 14 Phone Visit with Dr. C. (Topeka) Rec RT
July 15 Personal visit with Dr. R. Decided on RT
July 29 45 ml Lupron Injection
Aug 25 2nd PSA test = 9.0
Aug 27 Fiducial Placement (3 markers inserted)
Sept 3 RT simulation
Sept 9 Began 1 of 42 treatments.
Nov 5 Completed 42 Radiation treatments- no side effects.
Nov 10 3rd PSA test= 0.3
2016
Jan 18th PSA test= .1
Jan 29th 2nd scheduled Lupron injection- refused due to side effects. (letter to Dr. Rine)
Mar 9th Dr. Barbara L., pretty much said continue on Lupron or metastasization into bones. Lupron injection scheduled.
Mar 21st Went in to SBA hospital for PSA Check.
Went to Wichita Urology Dr. Z for Lupron injection. 45ml (6 mo)
Also received 16ml Prolia injection to minimize bone loss.
PSA test = .4… I was 2 months beyond the Recommended interval
May 1st Slight burning during bowel movment. Some weight gain (5 pounds) Possible 1" height loss ??? Definite Gynecomastia.
Some urinary restriction- resumed Flowmax (.4mg). (resolved)
Elevated BP. Continued hot flashes. (Black cohosh 40mg)
Joint pain (Ibuprofen 200mg 4 times daily). Occasional slight dizziness with blurry vision. Marked short-term memory loss.
If next PSA is elevated, is Provenge indicated? Intermittent therapy w/Lupron? Any recommended clinical trials?
May 18th Appointment with Dr. Barbara L. for above.
Next scheduled appointment in October 2016 for an additional Lupron shot.
June 14- Contacted Dr K.'s office and requested a PSA test.
June 16- PSA test= undetectable
Aug 11 Complete Physical PSA > .01
Nov 29 complained to Dr. L of urinary/bowel problems-Diag UTI
Rx for Flowmax (.4mgx2) and Ciprofloxacn (500 mgx2). Resolved.
Re-Scheduled Lupron + Prolia for 12/10/16 at 11:10- Specialty Clinic
12/5/16 Blood drawn for PSA and Testosterone in ant of Dr. Luder rec Lupron
12/9/16 PSA 0.2 Testosterone 291 for Dr. Z on Fri 12/10/16
Dr. McK- proctoscope for polyps, two removed. (Benign)
12/10/16 45 ml (6 month) Lupron +16ml Prolia injections.
2017
1-15-17 through 2-1-17 Urinary restriction- Dr. Ku. Rec by Dr. Z
2-7-17 Appointment with Dr. Z for urinary restriction/burning,etc
Prescription for Myrbetriq (mirabegron-50mg 1X day); Tamsulosin .4mg 2x; Ibuprofin 200 mg X 6 daily. Small spot on Bladder. Next Appt. June 23
2-23-17 Annual Appt with Dr. C-Blood sugar OK
3-7-17 Follow up " " "
3-15-17 Began Atkins diet (low carb- high fat) began at 186 lbs.
Also 2 Aspirin daily+ 16 Oz Cran-Pommegranate juice. Began taking 2 capsules of Pomi-T daily + .15ml CBD oil sublingually. Cont'd urinary restriction.
5-25-17 Wt now 182. Continuing with 3-20-17 (above) program.
6-2-17 PSA undetectable. Dr, Z (urologist) suspended any additional Lupron injections unless PSA rebounded upward.
6-23-17 PSA checked again with annual physical. <.1 . Dietary changes include no milk, no red meat, no sugar. Increase of veggies and fruit plus
pomegranate juice. Weight down to 167.
9-19-17 Blood test prior to unrelated suergery on shoulder. PSA =.2
11-1-17- No recent urinary restriction. Back to daily 5K walk. Weight holding at 162.
It has been while since I updated. I have been self-administering 3 drops of CBD oil every other day or so. Diet is low on sugar, no red meat, (emphasis on fish and chicken for protein) and low carb. Moderately active with daily walks. Urinary restriction seems to have self-corrected. I have even experienced erections of late!!
12-20-17 Weight up to 170. Post Thanksgiving, bigger meals, etc.
2018
2-2-18 9PM. Could not begin a urine stream. Severe pain. Visited hospital emergency and had a catheter placed. Began taking Flomax again. Set up an appointment with Dr. Zakharia for 2-8-18
2-7-18 PSA = 0.6 Testosterone= 562 Weight 167 Appointment with Dr Zacharia
2-8-18 Dr. Z provided some free catheters and stated that if rebound PSA does not stabilize at or below 2.0, then he recommended re-starting Lupron.
2-10-18 Discontinued Flomax
4-5-18 Appointment with Dr. Zakharia for cystoscopy/dilation- Cancelled
5-3-18 Call from Dr. Luder's office - Hytrin (terazosin)was not effective +blurred vision. Suspended back to Flomax.
5-7-18 PSA = 0.9
5-10-18 Visit with Dr Luder. (Ask about PET scan) Watch PSA - Increase frequency to every 3-4 months. Trigger point 2.0
5-24-18 Self-cathed 5 times in the last 20 days. Possible mild UTI. Took AZO, cranberry extract and large quantities of water. Seems to be OK now.
5-31-18 Cystoscopy+Lupron injection. (+45mg Lupron+Prolia) Bladder irritation no Stricture Took 1 500 Mg Cephalexin for two days following cycstoscopy
8-3-18- PSA=<.1 Testosterone=3 Visited Dr. Z on ty8-9 and rec'd size 16 cath. Continue meds and cathing as necessary- re-visit in 3 months. Lupron forever
Currently taking:
Rx drugs: Tamsulosin (flomax).4mg - as needed.
Biggest issue now is urinary restriction. I have to get up about every hour to pee a fairly small (amount 2-3 ounces). If I fail to do so, then I have to use a catheter. What a pisser!
Not sure where I left off, but I will pick it up beginning 2018:
2018
2-2-18 9PM. Could not begin a urine stream. Severe pain. Visited hospital emergency and had a catheter placed. Began taking Flomax again. Set up an appointment with Dr. Zakharia for 2-8-18
2-7-18 PSA = 0.6 Testosterone= 562 Weight 167 Appointment with Dr Zakharia
2-8-18 Dr. Z provided some free catheters and stated that if rebound PSA does not stabilize at or below 2.0, then he recommended re-starting Lupron.
2-10-18 Discontinued Flomax
4-5-18 Appointment with Dr. Zakharia for cystoscopy/dilation- Cancelled
5-3-18 Call from Dr. Luder's office - Hytrin (terazosin) was not effective +blurred vision. Suspended.
5-7-18 PSA = 0.9
5-10-18 Visit with Dr Luder. (Ask about PET scan) Watch PSA- Increase frequency to every 3-4 months. Trigger point 2.0
5-24-18 Self-cathed 5 times in the last 20 days. Possible mild UTI. Took AZO, cranberry extract and large quantities of water. Seems to be OK now.
5-31-18 Cystoscopy+Lupron injection. (+45mg Lupron+Prolia) Bladder irritation no Stricture Took 1 500 Mg Cephalexin for two days following cycstoscopy-
8-3-18 - PSA=<.1 Testosterone=3 Visited Dr. Z on ty8-9 and rec'd size 16 cath. Continue meds and cathing as necessary - re-visit in 3 months. Lupron forever.
12-5-18 PSA=.1 Weight 179. Lethargic, cathing >3 times daily
12-27-18 Lupron injection 23 mg (3 month shot) +prolia
2019
1-18-19 Cystoscopy followed by Urethrotomy to relieve stricture caused by radiation. Wore foley catheter for two days. Some bleeding for 6 weeks or so. Suspended all nsaids.
3-13-19 Began Olmesartan 20mg for hypertension. Weight 176 suspended after 2 weeks.
3-19-19 Some discernible difference in urinary problems. Dr. Luder rec. Dr Z
3-27-19 PSA =undetectable - canceled appoint with Dr. Zakharia
6-5-19 no urinary restriction until this last week. Needed to Cath to pee.
Palpation required if no cath. Very poor flow with little quantity.
6-10-19- Contacted Dr. Luder. Requested pet scan. Bilateral flank pain. Will CB She recommended a bone scan. Urinating small amounts every 30min.
6-13-19 Bone scan performed. CD available. No Significant uptakes.
6-20-19 through 7-6-19. Series of 500 mg Ciprofloxacin
7-12-19 Dr. Zakharia 11AM. Currently taking .4mg Tamsulosin twice daily.
8-10-19 suspended Tamsulosin. PSA ordered.
8-12-19 PSA = 0.3
8-16-19 appointment with Dr Zakharia
8-25 PSA ordered for Dr. Z PSA = 0.8
11-7-19 LUPRON injection 23 mg (3 month shot) +prolia
12-10-19 PSA=0
2020
2-25-20 Contacted Dr Reddy and Dr Kuhns to see about a PSA . Terry w/ Dr Kuhns called back. Standing order for periodic PSA test
4-10-20 PSA undetectable
8-6-20 Blood draw at Cancer center for Dr Reddy PSA-0.9
8-11-20 Met w/Dr. Reddy- He recommended Lupron shot and bone density test
(agreed to cancel Dr Zakharia to avoid intrusiveness of Cystoscopy.
10-01-20 Wellness checkup + Flu shot
11-6-20 PSA 0.4
2021
3-25-21 PSA 1.0 Increased need for catherization. 3-4 times nightly.
5-15-21 New order for size 12 caude tipped catheters
6-11-21 PSA 0.8
6-15-21 consultation with Dr Zakharia- He recommended a cystoscopy under a general asthetic to correct urine retention problem.
7-11-21 Cystoscopy at Susan B Allen- Increased need for catheterization after surgery. Post surgical care included Entrapped pubic hairs in foley catheter and extreme sore throat from intubation. No reason given for the need to intubate.
7-15-21 increased need to catheterize. Have to pee every 20-30 minutes. Now using catheter 5-7 times daily.
8-15-21 Requested a meeting with Dr. Zakharia. Phone consultation scheduled for
9-29-21 to discuss setback.
11-05=21 PSA 1.0
11-12-21 DR Zakharia wants me to go back onto Lupron. Refused until PSA hits 2.0 or increases in doubling time. Want continuation of 500mg Cipro twice daily for 30 days. Did so.
12-21-21 Had Urolift procedure performed. Exited procedure Staff used a size #20 Foley catheter entrapped pubic hair with insertion. Very painful.. Removed after 3 hours. Heavy bleeding followed for ½ day with only two uses of a #12 catheter for the next 12 days.
2022
03-03-22 Using catheter about 5 times a week. Blood draw for PSA for Dr. Reddy. Teleconference with Dr. Reddy on 3-8
03-08-22 Dr. Reddy stated PSA 1.0 and recommended watchful waiting with no trigger until 2.0 up to 4.0. At some point wants me to have a PSMA scan.
5-10-22 catheter usage up to 4-6x's daily.
10-10-22 catheter usage 6-8x's daily
https://radiology.ucsf.edu/psma-pet-scan-for-prostate-cancer
7-12-22 Appoint w/Dr Reddy, PSA 1.0
11-22-22 PSA 0.9
2023
2-10-23 Visit with Dr Zacharia at SBA. Continue with my program.
3-24-23 Blood draw for Dr Reddi
3-29-23 Visit with Kaitlin (Katie) Hornbeck PA. For Dr. Reddy PSA= 0.6
7-20-23 Blood draw for Dr Reddi. Analysis provided PSA 0.7
OTC supplements to encourage apoptosis of my prostate cancer:
Vitamin D3 1000IU
Zinc Quercetin 22mg (zinc) 800mg (Quercetin)
Resvertrol 1000mg
Milk thistle 240 mg
EGCg 400mg (green tea extract)
Ginger root 550mg
Graviola 1500mg
Turmeric Curcumin 500mg (Curcumin) 450mg Turmeric
NAC 600mg (N Acetyl Cysteine)
Wormwood 425mg (Artemisia annua)
Dioscin 500mg (Dioscin Yam + Chaste Tree)
Pygeum 500mg
20 minutes (shirt off) exposure to sunshine daily when available.
10-15 Cherry tomatoes daily for Lycopene.
Marvin's e-mail address is: marvinsteele200 AT gmail.com (replace "AT" with "@")
