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This is his Country or State Flag

Ronald Linde and Roger live in Washington, USA. He was 54 when he was diagnosed in May, 2005. His initial PSA was 4.50 ng/ml, his Gleason Score was 7, and he was staged Unknown. His initial treatment choice was External Beam Radiation (Other) and his current treatment choice is ADT-Androgen Deprivation (Hormone) (Other). Here is his story.

THERE WAS NO RESPONSE TO AN UPDATE REMINDER IN 2019 SO THERE IS NO UPDATE.

I was diagnosed in 2005 at the age of 54. My PSA at diagnosis was 4.5. Treatment: external beam radiation and brachy. PSA started to rise in 2013. Treatment: spot cryotherapy. In 2016, my PSA spiked again and I was diagnosed with Advanced Cancer. Current mode: waiting for the next PSA in November. My oncologist/urologist at University of Washington indicated that my next line of treatment would be cycled ADT. I am not amused!

UPDATED

December 2017

Since I first posted on YANA in 2016, I was waiting to find out if I ADT was my next line of treatment after external beam radiation & brachy therapy (2005) and cryotherapy (2013). My PSA began to rise above 1 in late 2014. I was monitored and underwent the usual tests and scans. No evidence of the cancer spreading was found. But my PSA continued to rise until it was nearly 20; At this point I sought treatment at Seattle Cancer Care Alliance. After more tests and scans, I was told that 3 spots of concern could be seen, two in my right pelvis and one in my lungs. I underwent a lung biopsy which was negative. The two spots in the pelvic region were certainly bone mets and I started quarterly Lupron shots in May. Shortly thereafter, my oncologist recommended that I add aberaterone (Zytiga) daily based on positive results from two drug trials. My first PSA after the shot was 2+; the next PSA included the Zytiga and my PSA was 0.3. The Zytiga is nearly $10,000 per month but my husband's insurance agreed to cover it after my oncologist sent them a letter. My co-pay is $20 per month. I am very fortunate. My next PSA is the third week in January 2018. So far, I am tolerating the regimen well despite the usual side effects of ADT. I will post again January.

Ronald's e-mail address is: rogerdodd33 AT msn.com (replace "AT" with "@")

NOTE: Ronald has not updated his story for more than 15 months, so you may not receive any response from him.


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