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Chansa B lives in Zambia. He was 59 when he was diagnosed in March, 2014. His initial PSA was 65.00 ng/ml, his Gleason Score was 8, and he was staged Unknown. His choice of treatment was ADT-Androgen Deprivation (Hormone) (Other). Here is his story.

I started experiencing difficult in passing urine about March 2014. An ultrasound scan revealed an enlarged prostate gland. I was on a catheter for about two months. A rectal exam confirmed that my prostate gland was enlarged with irregular edges, leading to prostate cancer suspicion. A biopsy confirmed advanced prostate cancer. An MRI and a "Nuclear biology/technology" scans ruled out spreading of the cancer to the bones but only confined to the soft tissues in the groin/waist areas. Of course the left lymph nodes in the groin were initially swollen, but not now. An oncologist put me on Zoladex (10.8mg) implants in June, 2014. I have since been taking this treatment every three months. My PSA fell from 65 to about 0.1. In Feb. - March, 2015, I underwent 15 sessions of radiotherapy and my PSA dropped to 0.02. But it went up to about 0.2 in September, 2015. I'll do another PSA in December, 2015 when I go for another treatment and review. So far, so good, though I am having challenge with passing urine. Incontinence seems to be creeping up.

UPDATED

November 2015

Side-effects of my ADT are hot flushes, weight gain and penile dysfunction.

UPDATED

December 2015

My PSA on 28 December 2015 was 0.07.

UPDATED

April 2016

In addition to ADT, I started taking Prostate complex, Immune complex (from Nativa) and Omega 3 supplements in February, 2016. My PSA dropped to 0.01 in April, 2016. I have also been doing aerobics regularly. However, I am having problems with incontinence and UTIs.

UPDATED

August 2016

When I went for my review in June, 2016 with a PSA of 0.01 (same as the one for March, 2016), I was told the treatment regime will change because I can only be on Zoladex for two years (that is, since June, 2014).

I was asked to go back for review six months later (December, 2016) when I will be put on a new drug, which was not disclosed to me. I am doing fine apart from the usual urinary and minor urge incontinence. I have noticed a reduction in thickness of the urine stream, and I have to go often to the toilet, particularly at night, as a result. I am worried my urethra might get blocked.

UPDATED

September 2017

In December, 2016, my PSA was still 0.01, (from the original 65 in June, 2014) and still I was not put on any medication, after two years of Zoladex which was stopped in June 2016.

Zoladex was chosen as the first line of treatment because my PCa had spread to the groin area but not to the bones and other parts of the body. I also underwent radiation therapy for fifteen sessions only in February, 2015.

My next review was scheduled for June, 2017. However, in June, 2017, my PSA had increased to 0.2, a rise of 20 times in six months. I got worried, but my doctor told me it was nothing. He only asked me, when going for review in December, 2017, to take with me both the September and December PSA test results for comparison purposes.

My side effects are still mainly incontinence, hot flushes, penile dysfunction (although of late I am experiencing mild sexual feelings), slightly enlarged breasts and tummy.

Chansa's e-mail address is: chansa56 AT yahoo.co.uk (replace "AT" with "@")


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