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Papa Whiskey L lives in California, USA. He was 60 when he was diagnosed in October, 2015. His initial PSA was 4.70 ng/ml, his Gleason Score was 6, and he was staged T1c. His initial treatment choice was Surgery (Robotic Laparoscopic Prostatectomy) and his current treatment choice is None. Here is his story.

THERE WAS NO RESPONSE TO AN UPDATE REMINDER IN 2021 SO THERE IS NO UPDATE.

This is joe_just_joe.

I had a PSA test showing 4.7 in September 2015. It was my 4th rising PSA in a row. My doctor recommended a needle biopsy. Due to BPH, my prostate was estimated to be 96 grams, 5 times larger than a normal prostate. I got the biopsy results in October 2015. The pathologist found a cancer he scored as Gleason 6 (3+3).

In November 2015 I had a robotic nerve-sparing radical prostatectomy. My doctor said the operation went very well -- a textbook case he said.

I am at home on recovery. I scheduled 1 month off from work. Currently I am trying to manage the urine bag. My world - walking the dog so to speak. Looking at my list of goals. Regain contenance. Regain sexual function.

UPDATED

November 2015

Six days after surgery, my doctor called to tell me the pathology report was in. "There was only the one spot of cancer," he said. "The margins were clean."

Ten days after surgery I had the catheter removed. I'm working on relearning how to be continent again. The doctor said I was cured of cancer. He also gave me a sample of Cialis.

I have to call the doctor about the Cialis prescription. On the second day of taking the pills, I got a dull pain in my left arm / back. It made it impossible to move my hand and arm as before -- I couldn't put my left hand on top of my head, or reach the coffee filters on the shelf at eye level. A side effect of this drug. I took only two pills, and after 3 days without the drug there is no pain and most of the mobility has returned. I'm going to ask my doctor if Viagra or Levitra can work for me or if I need to continue with Cialis and fight thru the back pain / muscle stiffness.

UPDATED

February 2016

It's been 10 weeks now since my nerve-sparing robotic radical prostatectomy. I had the blood test done about 5 days before my doctor's appointment and he reported my PSA was ''unmeasurable.'' I now feel comfortable using the term ''cancer free.''

I am still dealing with incontinence and erectile dysfunction, although both situations are improving. In some ways the incontinence was the hardest to deal with for me, since loss of bladder control is so unnerving. But I have signs regularly that my situation is improving -- a big improvement from the early days after the catheter was removed when it seemed like I would never stop leaking.

UPDATED

May 2017

November 2016

One year after surgery I have 3 PSA tests in a row of ''unmeasurable.'' My doctor said he was confident enough to say I was cured. Normally it takes 5 years to declare a patient to be cancer free, but my doctor was really confident.

The erectile dysfunction has - what's the proper term? Subsided? Improved? Before surgery I had absolutely no erectile dysfunction at all. After the surgery I didn't have any erection for about the first month but found success with Cialis and using a vacuum pump. I used the pump for a few months and combined with Cialis my erections returned to as normal as I remember. Some days I do have some bit of morning erection as well.

Not so much success with the incontinence. One year out I am still using Tena incontinence pads, averaging one per day. I generally don't leak while sitting or lying down but do leak unexpectedly most often while walking and on those instances it tends to be while walking downhill (?!?!?). My doctor said to focus on tightening up the pelvic floor muscle in anticipation of those events to which I have had some success but still leak unexpectedly.

The combination of the two ''side effects'' gives me an opportunity to feel like a twenty-something, going into Costco to buy a 48 pack of condoms. With no prostate therefore no ejaculate the average observer would imagine no need for condoms. But the condoms prevent me from leaking urine during sexual intercourse. Fun to buy the condoms but embarrassing just thinking about explaining to anyone what I need them for.

My wife is more understanding and accepting than anyone I know.

UPDATED

September 2018

It's been 2-1/2 years since my surgery, a robotic prostatectomy. Since then all my PSA tests have been < 0.1.

The biggest fears I've heard from men are (1) erectile dysfunction; and (2) incontinence.

Before the procedure, I had not experienced erectile dysfunction. It occurred after surgery. My Urologist prescribed Cialis which worked well for sexual activity. I've also used Sildenafil (generic for Viagra).

I have not regained complete bladder control. I use incontinence pads because I still experience leaking. Usually while on long walks, my bladder just leaks. I usually go 2 days on a pad.

It makes for fun being retired and buying condoms at Costco - the 48 pack. I use condoms for sexual intercourse to prevent urine leaks at the most inopportune time.

Before the surgery, my Urologist said that 75% of his patients experience a return of sexual function and 95% return to full continence. I guess 1 out of 2 ain't bad.

UPDATED

October 2019

My 4th anniversary for surgery is coming up in November.

My doctor put me on a once-a-year schedule for PSA testing. My last test 12 months ago was < 0.1, 6th test in a row at <0.1.

I still am experiencing stress incontinence as a side effect of the surgery. It's a minor distraction that I've learned to live with. I can manage situations that worried me before -- I returned to swimming almost 2 years ago. I worried that I would leak while in the pool but haven't since returning the the pool for twice a week swims.

I have changed my diet to low carb (almost Keto) and have been able to go off medication for Diabetes, high blood pressure and a statin for cholestorol.

The best part of my story is I am cancer-free and cannot get prostate cancer ever again.

Papa Whiskey's e-mail address is: joeroyled AT yahoo.com (replace "AT" with "@")

NOTE: Papa Whiskey has not updated his story for more than 15 months, so you may not receive any response from him.


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