Walnut

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YANA - YOU ARE NOT ALONE NOW

PROSTATE CANCER SUPPORT SITE

 

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W P lives in Minnesota, USA. He was 61 when he was diagnosed in June, 2015. His initial PSA was 4.28 ng/ml, his Gleason Score was 9, and he was staged Unknown. His initial treatment choice was Surgery (Robotic Laparoscopic Prostatectomy) and his current treatment choice is External Beam Radiation+ADT (Intensity Modulated with ADT). Here is his story.

THERE WAS NO RESPONSE TO AN UPDATE REMINDER IN 2018 SO THERE IS NO UPDATE.

I went through some difficulty the first few weeks. Actually quite scared and the YANA site really helped to both answer some questions, but more to hear it from a patient point of view rather than from a physician. I was initially told that I would lose my left nerve, be impotent, and probably have some permanent leakage. When I scheduled the robotic surgery I was told the day I wanted was available but the physician's tech was on vacation and they would just have a new doctor in the group fill in for the tech. I was uncomfortable with this so I went for a second opinion to another group. It was absolutly day and night! The new group was incredible from the minute you walked in the door. They were totally set up to treat you and your family. The physician and his partner (another surgeon) do every procedure together, no exceptions, and they consider the team critical. He also said he could spare the nerve and that I should regain total bladder control. They have a pre-op education program which was incredible, answering every question about cancer, the surgery, and recovery. They also ask you to commit to enrolling their post-op program, committing to regular visits and PSA; testing for 5 years. I am feeling comfortable that, while there is no guarantee, I now will have the surgery and have the opportunity to reset the clock on my life.

UPDATED

October 2016

I have just completed 36 radiation treatments while on 6 months of Lupron. I will then switch to 150mg daily of Casodex for 18 months.


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