THERE WAS NO RESPONSE TO AN UPDATE REMINDER IN 2020 SO THERE IS NO UPDATE.

46 yr old diagnosis= local PC w/nodule, Gleason 6/7(3-4) at time of surgery. After a year on Active Surveillance I had an endorectal ultrasound that showed the small tumor I had was bulging a bit & my PSA had gone from 2.6 to 3.2 from July to Oct. I chose robotic prostatectomy at Cedars-Sinai, performed by my Urologist Dr Hyung Kim. Procedure was performed on Dec 12th. Took approx 4 hours. I left the hospital the following day. The most discomfort came as a result of gas building up. I had first bowel movement 2 days later. Catheter was in for 10 days and was uncomfortable some of the time. The night I had it removed I had an awful burning in my penis. This was either a Urinary or yeast infection. I have 5 small incision scars. My Dr was able to spare nerves on both sides of prostate. I have had a few non-erection orgasms(dry) in the month after surgery. I will use Viagra once a month to promote blood flow. My Dr said lab report showed no cancer outside prostate- PSA in 2 months.

I am 13 months post robotic prostate removal. My last PSA was in December '15 and it is undetectable. My libido is mildly reduced and I still do not get erections spontaneously, as I did before the surgery. However, I have been able to have orgasm since 3 months post surgery and I have had erections suitable for penetration since August. I have not tried Viagra since then, when it had no effect. I am able to gain erections through self or partner stimulation and the use of a restrictive ring works as well, although not required. I also used a battery operated pump system until September '15 and found it somewhat useful in exercising my penis. Sex has been very enjoyable without having the old response. My wife and I have found lots of new ways to pleasure each other and in some ways it's been a relief not to have that one aspect of myself dominate the experience. Also, since I have no ejaculate the orgasm experience is a less messy one for both my wife and myself. I continue to use good nutrition and exercise as ongoing treatment for my overall health. Be well.

I am now 2 full years past treatment and have had no recurrence of cancer. The only lasting issues are sporadic moments of leaking urine (very small amount) when twisting or with sexual activity & lack of erections. Use of Viagra(100 mg) and Cialis(20 mg) have been largely unsuccessful and frustrating. Also, the Cialis gives me a dull headache lasting for a few days. Otherwise, I am still able to have an orgasm.

So I am now more than 3 years past robotic prostate removal and am doing well. No cancer and PSA continues to score as undetectable. My erections have improved some over the last year and doing Kegel exercises has helped. I still get a bit of urine leakage at random times: twisting at the hip, initial sexual stim, bending- though it's not consistent. Emptying the bladder before sex is good. I still marvel at the type of orgasm I have now; very intense and no mess! Most of the scars (5 total) have faded/healed. Good luck to you all.

Not much has changed since last year. Erections still hard to come by, puns intended. I still have random urine leaks. All in all, I am happy to be free of the worry about what is happening inside me. It was a blessing of course to have been given a cancer diagnosis that didn't come with any detectable side effects or pain. On the other hand, there was the nagging feeling that I couldn't tell if anything was approaching the "danger zone". So I chose to have it taken care of when the 7th diagnostic showed the nodule was doing some bulging. I hope this helps someone out there. Feel free to contact me with any questions/guidance. Be well

Ian's e-mail address is: bassgalespie AT gmail.com (replace "AT" with "@")

NOTE: Ian has not updated his story for more than 15 months, so you may not receive any response from him.