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YANA - YOU ARE NOT ALONE NOW

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B G lives in Kentucky, USA. He was 68 when he was diagnosed in January, 2013. His initial PSA was 3.70 ng/ml, his Gleason Score was 6, and he was staged T1a. His initial treatment choice was Non-Invasive (Active Surveillance) and his current treatment choice is Other (Other). Here is his story.

THERE WAS NO RESPONSE TO AN UPDATE REMINDER IN 2014 SO THERE IS NO UPDATE.

My, just turned 68 yr. old husband, was recently diagnosed with prostate cancer. He is very healthy and takes no prescription meds at all and has no family history of prostate cancer. His family Dr. suggested he see a urologist after his PSA had risen some over the last two years to 3.7. He felt nothing on the DRE but just wanted to be certain. The urologist he went to said his prostate felt a little asymmetrical so he suggested a 12 core biopsy.

He tested positive in one left mid core involving approx. 5-10 % of total biopsy length. He also ordered a CT scan which was completely negative. We did not know any results of any tests before we had a consultation. However, we did a lot of research before going in for our consultation and decided that active surveillance would be our choice of treatment depending on the test results.

After the urologist told us the results....he only briefly touched on "watchful waiting" before going on to other forms of treatment. He finally suggested my husband do 9 weeks of radiation so "he could get this all behind him and go on with his life". He understated any side effects of radiation therapy but did answer a few questions we had. He asked us no questions about our lifestyle, etc. Only after we insisted that we were very concerned about serious side effects of most all other forms of treatments, did he reluctently say that my husband could be a candidate for AS. We asked about any clinical trials available and he set him up with a consultation with another Dr. in their group who does reasearch only.

We haven't seen him yet but will be looking into possibly a new clinical trial involving an injection directly into the prostate with a drug, (need to look up the name) that has been very useful in treating bph. Can tell you more after our consultation on the 19th of Feb.

My question is this. Has anyone else had a similar experience with their Dr. sweeping aside AS, for a serious form of treatment, when they have had a similar diagnosis of low risk, early stage cancer (my words) as my husband? Thanks in advance for your responses and I apologise if I have rambled on and on. [You certainly have not rambled on. You have told your story clearly and with enough detail for readers to understand it. In answer to your question, I met many doctors who would not support WW or AS and I am sure when you read through my experience and other experiences on the site you will find more.]

UPDATED

February 2013

Wanted to give the name of the drug that will be used in the clinical trial that my husband hopes to qualify for. The drug is NYMOX. Will give more info as it becomes available.

UPDATED

February 2013

Met with the Dr. today and feel blessed to have been accepted in a very promising clinical trial, for volunteers on Active Surveillance, who have low risk, early stage prostate cancer. Will return next week for a lot of blood work, dre, PSA;, questionaires, ekg, etc. This is a three arm trial (Nymox Lab) and we hope to be selected into one of two groups who will receive a single dose injection directly into the area of the prostate tumor. This injection has shown, in some cases, to be effective is killing bph and prostate cancer cells. Will update with additional info when we have some.

UPDATED

March 2013

Today is the day we have been waiting for. Barry is going to the clinic today for his first round of tests. They will include a dre, electrocardiogram, blood test, questionnaires, urine test, etc. They will also review the slides of his biopsy. The research team will then decide if he qualifies for the study. If he is accepted he will be chosen at random to participate in one of the three arms of this trial. The three arms of the study are: continue on active surveillance, or recieve a direct injection of (NX-1207) into the prostate. It would be a dose of either 2.5 or 15 mg. We are hoping for the injection of course. That is all we know for now but will update as soon as possible.

B's e-mail address is: dkaygoodall AT aol.com (replace "AT" with "@")

NOTE: B has not updated his story for more than 15 months, so you may not receive any response from him.


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