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Tom Gomes lives in California, USA. He was 63 when he was diagnosed in January, 2012. His initial PSA was 8.10 ng/ml, his Gleason Score was 7a, and he was staged Unknown. His initial treatment choice was Brachytherapy (High Dosage) and his current treatment choice is None. Here is his story.

It's been a long journey for me. Prior to diagnosis, I was exposed to lot of negative prostate cancer discussions regarding the value of the PSA test and specifically, over treatment. Because of this, my high PSA reading was more an annoyance than a fear to me. I was referred to a urologist and she suggested a biopsy. My initial PSA was 8.1 and then corrected to a 4.8 with two weeks of antibiotics. I have no symptoms and a normal size prostate. I very reluctantly agreed to a biopsy. It was January 2012 for my initial reading and the Biopsy occurred at the end of July.

In the meantime, I began to take this whole prostate thing seriously and started doing a lot of reading and research. I was mostly influenced by a book by Dr Aaron Katz. He clearly explained all the issues and therapies and I was very intrigued by his "Holistic Therapy". In fact, I actually started taking his recommended supplements, changed my diet to "Organic" and began a strong exercise routine and am still following this routine. I have never been a vitamin/supplement kind of guy and was skeptical, but I figured that the only downside was the cost of the supplements. I figured that this approach was like active surveillance with an improved lifestyle. Even if I decide on a procedure in the future, I felt that I would respond to the treatment much better if I was in optimal physical condition.

After reading many sad stories of men like me whose cancers progressed made me reconsider possible treatment. I began to worry that I may have waited too long and missed my early detection opportunity to rid my body of this cancer. My reluctance to choose any treatment was because of my fear of the side effects (Quality of Life). It seems that most treatments had trade offs. In December, I came across two new (new to me) treatments. Proton therapy at Loma Linda and HDR Monotherapy at UCLA. I read two books on Proton therapy and was sold.

I live in Sacramento, so I decided to visit both Loma Linda and UCLA. It is about a six hour drive from Sacramento to these locations. I can expand upon my decision at another time, but will simply say that HDR Treatment at UCLA was a clear winner and I have scheduled treatment for February 27th.

With all that said, I must add a very intriguing part of my story. Getting back to the "holistic approach".......my PSA at the time of my biopsy (July 2012) was 5. My next PSA reading came DOWN to 3.8 in November 2012 and guess what?? My PSA came DOWN to a 3.0 in late January.

I am still fully committed to my HDR treatment but am very intrigued by my lowered PSA reading. Did the holistic approach actually shrink my cancer...or merely mask the PSA reading? I have read that PSA does not go down without treatment. [That is simply not correct. PSA levels can vary widely for no ascertainable reason. PSA associated with prostate cancer almost always increases consistently. It does not rise and fall - see PSA 101 for some basics on the subject.] Regardless, my lowered PSA has to be very positive to my treatment plan and recovery.

I will follow up with results and would appreciate any responses and discussions.

UPDATED

May 2013

I did have a delay in my procedure because my MRI revealed a slightly enlarged (7mm) lymph node, so my Doctor ordered another MRI and then C11 pet scan. Both scans were negative, so we went ahead and rescheduled the HDR Monotheraphy which I completed on April 4th. Initial side effects were as expected; however they disappeared quickly and I was able to resume mostly normal lifestyle almost immediately.

My first PSA will be the first of July and I will post results

UPDATED

June 2014

It has been 14 months since I had HDR Monotherapy at UCLA. Side effects are virtually zero. My PSA tests post therapy are a little erratic. At 3 months it was .9. At 6 months it was .7. At 9 months I had an unpleasant surprise at a 1.5....but at 12 months it came back to .9... A big relief to me. I have sometimes thought about stopping my PSA tests because the anxiety is not pleasant and the thought of further treatment is too depressing.

UPDATED

July 2015

It's been a little over two years now since my HDR Monotherapy at UCLA. My latest PSA was 1.1...higher than I would have expected, but Dr. Kamrava assures me that this is a good and reasonable PSA. In fact, he changed my PSA intervals to every 6 months.

UPDATED

August 2016

I'm at roughly the 3 year mark and my PSA came in at its lowest number so far at 0.4. My last test was 12 months prior and was fairly high at 1.1 and I was a little nervous, but am now very pleased. I have been working out vigorously and have been eating organically.

UPDATED

February 2017

I am happy to post that my most recent PSA test (2-17-17) came in at an astouding 0.1 (point 1)

UPDATED

March 2018

My PSA was taken on 2-27-18 and came in at 0.2..... up from 0.1 from one year ago. This is my 5 year follow up. I should mention that I did have a problem with medicare not wantng to cover the cost of the test ($200). I am going to hve to challenge medicare. I don't understand their justification.

UPDATED

April 2019

Just had my latest PSA and it came in at .1.....down from .2 one year ago

UPDATED

May 2020

My latest annual PSA test from December 2019 was <.1. I believe that I am in year 6 to 7. I couldn't be happier with the results

UPDATED

September 2022

Because of the pandemic, I've missed my past few checkups. My last PSA was <.1, so I'm not too worried about my PSA. I am a non-vaxer and have not contracted Covid (to the best of my knowledge). I am now 74, living the good life, with no pain, no side effects and very active physically.

UPDATED

October 2023

This marks my 10th year and my most recent (Oct 2022) PSA was <.1. My health is as good as ever!

Tom's e-mail address is: thomasgomes AT icloud.com (replace "AT" with "@")


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